In Part 1, I expressed
how I made my son use the word No and tried to express his feelings
and reduce his frustration(http://autism-contacts-in-india.blogspot.in/2013/10/autismtantrums.html ). Now I want to record the approaches I
am following.
- I made my son’s world predictable
By
setting up visual schedule,
my son knew what was going to come next and plan for the day.
With this, I was able to reduce his anxiety and hence tantrum
considerably. Many of us have telephone indexes and diaries to
control our schedules. A visual schedule similarly became a diary of
appointment for my kid.
- Ignore
Sometimes
ignoring him also works and is needed. For example, he
sometimes asks for Chocolate. But if there is none in house, I would
tell him, "Wait for daddy". Daddy would get it, but my son
would repeat the request continuously until he becomes hyper himself.
In those kinds of situations, after responding a couple of times, I
will ignore the repetitive requests.
- Isolate
Sometimes
when he is really upset and throws a tantrum, I used to isolate him
(courtesy: Super nanny* https://www.youtube.com/results?search_query=supernanny
for some time, say in his bed. I will not do this isolation in a
closed room or dark corners. I will keep him stay put in his usual
spots, sofa or bed. And I will ensure there are no dangerous things
around e.g. fragile items near him. In Super nanny program this
isolation used to be done little differently. But as my son does not
have that much understanding as a normal kid, I followed this
simplified version.
*Super
Nanny is a UK based TV program about a well-educated Nanny(one who
looks after kids) addressing behavioural problem with kids. Please
note these kids are normal kids without any special needs, but
definitely misbehaving. This nanny comes home (real life stories)
structures the family affairs, educates the parents, helps the kids
and leaves behind a peaceful family. This program made me realize all
the kids or same, whether normal or special. It is up to the parents
to create the right environment to change things. This program is
available in YouTube as well. Search with the key word “Super
Nanny”.
- Say strong No.
In
very dangerous situations when my son’s misbehavior is totally
unacceptable like crossing the road, playing near balcony ledge or
with electric items, I used to say a strong “No”. But before this
I used to constantly prepare him for accepting the “No” as an
answer.
- Distract
This
works when my son is in a little bit listening mood despite his
tantrums. At those times, I used to offer him his favourite food,
play bubbles or offer to play Rhymes DVD or songs etc. This used to
distract him and cool him down.
- Prepare
Preparing
him adequately for something to come is one way to reduce a known
tantrum that is going to come. For e.g. Hair cut is a no no to my son
owing to his sensory issues on his head and leads to tantrums. We
used to prepare him with head massage, haircut pictures, constant
communication that we are going to do haircut on a specific day. This
made him accept the activity (haircut in this example) and reduce
tantrums.
- Routines
Routine
is another way to reduce anxiety and tantrum for some specific
activities. My son’s Brushing was one thing that got sorted out
this way. He used to cry and shout for brushing. When I consulted my
visiting therapist, she told me that do it as a ritual and one day my
son would understand. So we did this everyday morning. And slowly my
son got used to it and eventually agreed to do this activity as a
daily chore.
However tantrums were
better manageable at my home rather than outside were lot of
distractions and unplanned things could happen. But with continuous
training at home, I realised my ability to soothe and bring my son
under control in outside circumstances improved.
But before all this, I
had a big change in some of my perspectives.
Managing Anxiety
Initially when my son
threw tantrum, I would get anxious and tensed. Being anxious I
realized I could not manage my son’s anxiety or tensions. It was a
bit of contradiction. Anxiety cannot soothe the anxiety. I decided
that I should overcome my emotional barrier.
Ignoring the public
comments
I learnt to ignore the
public comments or staring. Once when we were on vacation, a European
couple stayed in a nearby room. Seeing my son’s behavior, they
understood there was some issue with him. They approached us and said
they were priests of some faith and told us that they would like to
pray for our son. We told them we were not religiously inclined. But
they said that would not matter. We could not say anything further.
But it was a complete invasion of our privacy and a help that we
didn’t seek for.
And once when my son
complained of chest pain, we rushed him to a Paediatric emergency
ward of a well-known hospital in Bangalore. But my son was not
co-operative to walk in and let the doctor do the tests. The doctor
(who liked like a fresher) coolly said us to come the next day with
some “proper plan for handling him”. Just because my son had a
psychological difficulty can he be denied of medical support during
an emergency like chest pain? Myself and my husband were shocked by
Apathy.
I realized all categories
of people cutting across professions, across the world were just the
same, they were all “unaware” and could not help. So I decided to
ignore them.
Listening to my son
Whenever my son screamed,
the one thought that recurrently occurred on my mind is “why me”.
But after a point of time, I realized it was neither my mistake nor
my son’s. Trying to take control of my child whenever he threw
tantrum was very difficult until I trained him in controlled
circumstances at home. I realized rather than making the
communication unidirectional with my son, that is me giving
directions, I should also listen to him. When I listened and
interacted with him, he started listening to me. This helped me take
control when he lost his.
I strongly believe that
every tantrum has a triggering point. Recently for 2 days at a go, he
was hyper continuously. Eventually I realized a medication that I was
giving for his cold symptoms was the reason.
And also on working with
him on various methods, I realized the better he was at understanding
my communication, the less tantrum he threw. And improvement in his
communication lead to better understanding of my communication. This
was a key to control his moods as he grew up. When he was three years
old, I used to put him into a buggy (a controlled space) to reduce
his anxiety and tantrum. But when he was 8 years old, his needs got
sophisticated and I could not control his tempers by a physical
space. Good communication between both of us was needed. So today I
mainly work on making him express/communicate his needs, discomforts,
likes and dislikes.
I know there are lot more
challenges as my son grows up. But with better understanding between
both of us, good communication and relationship, we will outgrow all
troubles.
Tips
- Expose the kids continously to new situations , if unacceptable things happen, take it as a goal and work on it. If they are not taken to the outside world, there needs and difficulties will be hidden. So take kids regularly to park, relatives/friends place, long trips etc.
- Routinue will help the kids to learn. But if the kids are on a routinue then they will find difficult to cope with the sudden changes. So break the routinues at home at regular interavals. For Example change the study activity places at home like doing it on the bed, another day in the balcony instead of always sticking to the study table.
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Here is the link to the playlist of Activities done with Aakash, in YouTube: Click HerePlease click the following link for a comprehensive documentation of my journey with Aakash: Click Here
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